Turn this thing around..

PRAISE JESUS! Today, a prayer was answered!!!

I am so happy, I have tears in my eyes and we are rejoicing!

Ever since Thursday, I have prayed that Jesus would change my doctor's mind about these infusions. I desperately have felt that this is the way we should go, and would give me a chance at a somewhat normal life again with my family. In the end, I may still require a transplant, but J and I truly believe God is leading us to try the infusion route. It has been our ardent prayer for the last 5 days.

Today, the kidney doctor called and we had a conversation that could have only been Divine Intervention...

I told him that James and I were not really wanting to do a repeat biopsy and asked if there was any way we could do infusions without it? He said that he'd been thinking a lot since my appointment on Thursday, and he didn't think that was unreasonable. He said he was more worried about the infusions compromising my immune system, which is why he was not wanting to do it last week. I told him that J and I had discussed that, and we felt like my immune system was going to be affected either way regardless (whether by transplant or by infusion). It's gonna be at minimum 6 months before I could get a transplant, and that would be a good amount of time to see if the infusions will help me heal!

So today I am thankful for God's grace and interceding. I don't know if this is the answer, but I firmly believe this is the next step God wants us to take, and He has divinely ordered it!

After that call, he called back a few minutes later and said that he would like to start me on Ultimiris instead of Soliris. This means less frequent infusions - every 8 weeks I believe, instead of bi-weekly! Then he told me to go get my meningitis shot (because this medicine makes you very succeptable to it). Then he said, he's putting in the orders today, working on approvals, and we'd start in about two weeks!

Oh how my heart is rejoicing!!!!!!

I made a whole flurry of phone calls after talking to him, and finally found a place that gives the meningitis shot. Surprisingly out of 2 doctors offices, a couple pharmacies, and urgent care none of those administer the vaccine. I finally found a Walgreens that does, so at 3:30pm today, I will be able to get that shot!

This song has been my prayer since I got sick. I heard it when I got out of the hospital and it has been like balm to my soul. "All of my hope is in the name, in the name of Jesus!"

Today, my soul is overwhelmed for this answered prayer that we can try the infusions! Oh, how I pray they work!

If you've been following my story for any length of time, I hope that you see Jesus in all this. He has been doing HUGE things in my life the last 7 months and my life & my walk with Him are forever changed because of this.

My prayer from day one has been for you. That you would see Jesus in a whole new way and draw closer to Him. That you would see how good God is despite our daily circumstances. See, my story is really not about me at all. It's about Jesus, and it's about you. At the end of the day, if you come to know Jesus on a deeper level because I had to go through all of this, then it was all worth it!

Our new prayers are:

- for someone to discover Jesus and give their life to Him

- the ultimiris infusions would be approved by insurance

- that God would put His hand of protection on me while my immune system is compromised

- that if I have aHUS, that it would be put into remission and kidney function fully regained

With Hope,

Kimberly